Rare Disease Day

Terms and Conditions:

Liability and Consent

I have read and accepted the release of liability and consent.

In consideration of acceptance of this entry, I, the undersigned do hereby for myself, my heirs, executors, administrators, next of kin, distributees, guardians, legal representatives, assigns and anyone else who might sue on my behalf, forever release, acquit and discharge the Sanofi Genzyme and Genzyme Corporation officers, directors, employees and agents, TRACS, Inc. and their officers, directors, employees and agents, all sponsors, producers, staff, administrators, contractors, vendors and organizers (including race directors), USA Track and Field, all officials & volunteers, their agents, employees, all officials & volunteers, their agents, employees, Boston Parks and Recreation Department, the City of Boston, Cavalier Coach and any other group or individual associated with this Event, from any and all causes of action including but not limited to personal injury, illness, death or property damage, loss of services, expenses and loss of earnings on account of or in any way arising of, resulting from, or related to my participation in, or my traveling to or from the event, including but not limited to any claims of theft, negligence, partial or permanent disability, claims relating to the provision of first aid, medical care, medical treatment, or medical decisions (at an event site or elsewhere), and any claims for medical or hospital expenses in connection with the above Event.

I understand that the Event may be held over public roads and facilities open to the public during the event and upon which hazards are to be expected. I recognize that TRACS, Inc., in its sole discretion, may delay or cancel the Event if it believes the conditions on the race day are unsafe. In the event the Event is delayed or cancelled for any reason, including but not limited to: fire, threatened or actual strike, labor, difficulty, work stoppage, insurrection, war, public disaster, flood, unavoidable casualty, acts of the elements (including without limitation, rain, hail, hurricane, tornado, earthquake), or any other cause beyond the control of TRACS, Inc., there shall be no refund of any costs of participant in connection to the Event.

I acknowledge that it is my responsibility to understand the risks and determine whether I am fit to safely complete this Event and the precautions I should take. I attest and certify that my physical condition and ability to safely complete this Event has been verified by a licensed medical doctor (except where the latter is in violation of religious principles); and that I am physically fit and have sufficiently trained for this Event. I further acknowledge that I have no physical or medical condition that would endanger others by participating in the Event.

I, the participant’s Parent or Guardian, certify with my signature below that my son/daughter/ward has my permission to participate in the Event. The participant’s Parent/Guardian has read and understands the foregoing RELEASE and by signing intentionally and voluntarily agrees to its terms and conditions. The participant’s Parent/Guardian further certifies that my son/daughter/ward is in good physical condition and is able to safely participate in the Event. I hereby authorize medical treatment for him/her and grant access to my child’s medical records as necessary.

I warrant that I am of full age and have the right to contract in my own name. I have read the above authorization, release, and agreement, prior to this execution, and I am fully familiar with the contents thereof. This release shall be binding upon me and my heirs, legal representatives and assigns.

I have carefully read this entire agreement and fully understand its contents.


Photos and Videos

I have read and accepted the release and use of photos and videos.

I grant permission to all of the foregoing to use any photographs, motion pictures, or any other record of this event for legitimate purpose, including the Pledge For Rare website and subsequent post-event publications. Photographs from this event will not be used for a Sanofi Genzyme or Genzyme Corporation product-related advertisement. I have carefully read this entire agreement and fully understand its contents.

In consideration of my acceptance of this entry, I grant to Sanofi Genzyme, Genzyme Corporation and those working for or on behalf of Sanofi Genzyme, Genzyme Corporation, TRACS, Inc., and those working for or on behalf of TRACS, Inc., the irrevocable and unrestricted right and permission to take, copyright into Sanofi Genzyme, Genzyme Corporation, and TRACS’ name or otherwise, and use, reuse, publish and republish my name, voice, video, audio, or photographic portraits or pictures of me or in which I may be included without restriction as to changes or alterations, in conjunction with my own name or with no name, or reproductions thereof made through any medium and in any and all media now or hereafter known for illustration, promotion, art, editorial, advertising, trade, or any other purpose whatsoever. I understand that the above may be placed on Facebook, Twitter or other social medial, and may be subject to terms and policies of such media. I also waive any right that I may have to inspect or approve the finished product(s) and the advertising copy or other matter that may be used in connection therewith.

I grant to Sanofi Genzyme, Genzyme Corporation, and TRACS, Inc. the exclusive right to the free use of my name, voice and/or picture in any broadcast, telecast, advertising, promotion or other account of this event, except when usage suggests an endorsement of any product or service without my consent. I grant permission to all of the foregoing to use any photographs, motion pictures, or any other record of this event for any legitimate business purpose. This authorization shall remain in effect until revoked (taken back) by me. I may revoke this authorization and release at any time, however, I agree and understand that revoking (taking back) my authorization and release shall not affect any authorization and release made before my revocation is received and processed, including any print work that is in process at the time of revocation.

I release, discharge, and agree to defend, indemnify and hold harmless Sanofi Genzyme, Genzyme Corporation, and TRACS, Inc. from any liability by virtue of any blurring, distortion, alteration, optical illusion, or use in composite form, whether intentional or otherwise, that may occur in the taking of said video, audio, or photographic pictures or in any subsequent processing thereof, as well as any publication thereof, including claims for libel, slander or invasion of privacy.


Privacy and Personal Data

I hereby consent to the processing of my personal data as described in the following and confirm that I have been informed about the voluntariness and the revocability of this consent:

Eventbrite as a ticketing and registration platform collects the data from the registration form above (participant information) on behalf of TRACS, Inc. (TRACS). As manager of the Rare Disease Day 5K Run and 1 Mile Walk event TRACS stores the participant information on their servers in the US. The results of the Event (finishing time) will be added to the participant information, submitted to Sanofi Genzyme and Genzyme Corporation and published online on the Rare Disease Day 5K Run and 1 Mile Walk event website. TRACS stores the data for a period of seven years in order to comply with US legal and insurance retention periods. The Eventbrite servers archive the data for each TRACS project. The data will not be used for any other purposes.




Enrolled Participants

Lisa
Cambridge, US
Mark
Cambridge, US
John
Berkhamsted, UK
Tom
Mesa, US
Lori
Toledo, US
Akina
Boston, US
Monica
St. Louis, US
Lorna
Vancouver, CA
Carol
Indian Rocks Beach, US
Corinne
Tucson, US
Corey
Cambridge, US
Dang
Framingham, US
Rachel
Framingham, US
Loren
Keller, US
Stefan
Bridgewater, US
Nina
Bridgewater, US
Javier
San José, Costa Rica
Rainiero
Panama
Andres
Quito, Ecuador
Rossana
Guatemala City, Guatemala
Jonathan
Panama
Roberto
Guatemala
Byron
Quito, Ecuador
Alanna
Boston, US
Diego
Cambridge, US
Jeremy
Rio Rancho, US
Tatiana
San José, Costa Rica
Kristen
Somerset, US
Abbie
Winchester, US
Renee
Perth, Australia
Jerry
Singapore
Lee
Seremban, Malaysia
Jordana
Panama City, Panama
Giovanina
Quito, Ecuador
Neslihan
Istanbul, Turkey
Beth
Walthan, US
Lea
Manila, Philippines
Teresa
Manila, Philippines
Racquel
Caloocan, Philippines
Weeling
Singapore
Peter
Davao, Philippines
Rey
Cebu, Philippines
Andreas
Amsterdam, Netherlands
Robert
Antwerp, Belgium
Lurline
Las Piñas, Philippines
Samir
Manila, Philippines
Kelly
Overland Park, US
Jill
Medway, US
Loree
Eden Prairie, US
Sue
Scottsdale, US
Jena
Quezon City, Philippines
Maricel
Taguig, Phillippines
Egon
Amsterdam, Netherlands
Grace
Mandaluyong, Philippines
Jill
Worcester, US
Marian
Cambridge, US
Judith
Taguig, Philippines
Jazel
Manila, Philippines
Marlyn
San Jose Del Monte, Philippines
Aiza
Taguig, Philippines
Katharina
Vienna, Austria
Bettina
Vienna, Austria
Lisa
Vienna, Austria
Wolfgang
Vienna, Austria
Praveen
Waltham, US
Pam
Malvern, US
Natalia
Boston, US
Antonia
Carlsbad, US
Melissa
Fitchburg, US
Julie
North Reading, US
Vincent
Marikina, Philippines
Ravi
Westborough, US
Svitlana
Vienna, Austria
Bianca
Wiener Neustadt, Austria
Jad
Beirut, Lebanon
Julia
Vienna, Austria
Stefan
Bridgewater, US
Andrew
Somerville, US
Rana
Beirut, Lebanon
Andrea
Mccleland, US
Martha
Milford, US
Erika
Cambridge, US
Ozer
Bethlehem, US
Mohani
Bridgewater, US
Meghan
West Milford, US
Kuldeep
Upton, US
Barbara
Bridgewater, US
Praveena
Bridgewater, US
Agnes
Wien, Austria
Ted
Becker, US
Mary
Bridgewater, US
Joseph
Walpole, US
Kelvin
Westlake Village, US
Kays
Bridgewater, US
Andrea
Bridgewater, US
Jon
Stroudsburg, US
Amber
Boston, US
Mike
Natick, US
Melissa
Swiftwater, US
Lin
Bridgewater, US
Ray
Framingham, US
Richard
West Kingston, US
Dhanalakshmi
Dracut, US
Wick
Swiftwater, US
Kimi
San Francisco, US
Dru
Westoborough, US
Sarah
Columbia, US
Jyoti
Shrewsbury, US
Jon
Boston, US
Selvia
Reno, US
Deanna
Newport, US
Danielle
South Easton, US
Caleb
Kansas City, US
Talaha
Cambridge, US
Doug
Westborough, US
Christine
Rochester Hills, US
Capucine
Cambridge, US
Cassandra
Boston, US
Kathleen
Holliston, US
Michelle
Waltham, US
Corey
Bridgewater, US
Susan
Framingham, US
Gloria
Milan, US
David
Boston, US
Christine
Somerset, US
Alexandra
Boston, US
Jesse
Seattle, US
Leann
Perkasie, US
Imad
Cambridge, US
Joe
Bethlehem, US
Jason
Framingham, US
Reda
Cairo, Egypt
Ulrike
Frankfurt, Germany
Rainer
Frankfurt, Germany
Jennifer
Frankfurt, Germany
Jenusha
Vienna, Austria
Martin
Frankfurt, Germany
Beate
Frankfurt, Germany
Peter
Frankfurt, Germany
Stephan
Schwetzingen, Germany
Karin
Frankfurt, Germany
Andreas
Frankfurt, Germany
Christian
Mainz, Germany
Alexandra
Frankfurt, Germany
Deborah
Swiftwater, US
Christa
Frankfurt, Germany
Susan
Swiftwater, US
Hassan
Beirut, Lebanon
Qingping
Waltham, US
Helen
Miami Shores, US
Hanane
Beirut, Lebanon
Kellie
Burleson, US
Saria
Beyrouth, Lebanon
Anthony
Phillipsburg, US
Barbie
Medway , US
Annemarie
Villach, Austria
Bryce
St. Petersburg, US
Rima
Beirut, Lebanon
Stacey
Alta Loma, US
Jamal
Beirut, Lebanon
Marie-Joe
Beirut, Lebanon
Annemarie
Villach, Austria
Arabieh
Amman, Jordan
Jeremy
Beirut, Lebanon
Irene
Singapore
Anja
Frankfurt, Germany
Rana
Beirut, Lebanon
Karine
Beirut, Lebanon
Elie
Beirut, Lebanon
Koussa
Beirut, Lebanon
Mohammad
Beirut, Lebanon
Jamal
Amman, Jordan
Hazem
Amman, Jordan
Karam
Beirut, Lebanon
Elke
Gelnhausen, Germany
Omar
Beirut, Lebanon
Ibrahim
Amman, Jordan
Jana
Neu-Isenburg, Germany
Salma
Amman, Jordan
Petra
Neu-Isenburg, Germany
Firas
Mazraat El Toffah, Lebanon
Marcel
Aschaffenburg, Germany
Cynthia
Geel, Belgium
Alexander
Frankfurt, Germany
Geoffrey
Westborough, US
Gaylene
Emerald Park, Canada
Juan
Lyon, France
Jennifer
Cambridge, US
Ahmad
Beirut, Lebanon
Annemarie
Villach, Austria
Stephanie
Bridgewater, US
Cedric
Paris, France
Kathy
Holliston, US
Nathalie
Egly, France
Marian
St Julien La Geneste, France
John
Beirut, Lebanon
Lara
Beirut, Lebanon
Anas
Amman, Jordan
Stephane
Montpellier, France
Sven
Hochheim, Germany
David
Cambridge, US
Bart
Cambridge, US
Joanne
Boston, US
Cordula
Frankfurt, Germany
Zuzana
Cambridge, US
Filiz
Istanbul, Turkey
Suzanne
Concord, US
Canneva
Boston , US
Pauline
Beirut, Lebanon
Ana
Schwalbach Am Taunus, Germany
Thorsten
Oberursel, Germany
Anneke
Delmenhorst, Germany
Shelagh
Johannesburg, South Africa
Gaudefroy
Longjumeau, France
Laith
Amman, Jordan
Dominique
Paris, France
Sahira
Zahle, Lebanon
Haddad
Vitry, France
Eva
Paris, France
Niveen
Amman, Jordan
Maton
Paris, France
Kevin
Mexico
Yong
Guangzhou, China
Ludovic
Paris, France
Marissa
Paris, France
Kitty
Boston, US
Nina
Bridgewater, US
Stefan
Bridgewater, US
Brendan
Boston, US
Adama
Boston, US
Sanjay
Toronto, Canada
Caroline
Pointe-Claire, Canada
Bo
Cambridge, US
M P
Mumbai, India
Vimal
Delhi, India
Anika
Frankfurt, Germany
Katja
Bremen, Germany
Max
Berlin, Germany
Niveen
Amman, Jordan
GM
Croissy, France
Mairea
Barcelona, Spain
Masse
Paris, France
Gregory
Montpellier, France
Peter
Kriftel, Germany
Fabrice
Paris, France
Aliya
Almaty, Kazakhstan
Sallyanne
Bury St Edmunds, United Kingdom
Fabien
Paris, France
Daniela
Vienna, Austria
Carla
Toronto, Canada
Edie
Westboro, US
Stacy
Paris, France
Rob
Shrewsbury, US
Karsten
Frankfurt, Germany
Russ
Boston, US
Rena
Framingham, US
Amy
Boston, US
Anastasia
Thessaloniki, Greece
Yong Li
Guangzhou, China
Shannon
Cambridge, US
Marko
Zagreb, Croatia
Agnãs
Choisy Le Roi, France
Phil
Boston, US
Megie
Guangzhou, China
Raquel
Vienna, Austria
Antonis
Athens, Greece
Manjiri
Bridgewater, US
Gianluca
Boston, US
Monin
Paris, France