Rare Disease Day

Boston Common 5K Run/1Mile Walk (Massachusetts):

Register for the Boston Common event or purchase a shirt. $10 from every purchase will be donated to NORD. The additional fee is an Eventbrite’s credit card processing charge.

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Pledge4Rare:

Pledge your miles (or kilometers!) walked or run in February. There’s no limit to how many miles you log or how many times you pledge during the month. Each pledge gets us closer to our goal of 7,000 miles in recognition of the 7,000 rare diseases. There is no cost to pledge your miles and anyone, anywhere in the world can participate.

  Pledge Your Miles







Goal Tracking



100% to Goal

Enrolled Participants

Lisa
Cambridge, US
Mark
Cambridge, US
John
Berkhamsted, UK
Tom
Mesa, US
Lori
Toledo, US
Akina
Boston, US
Monica
St. Louis, US
Lorna
Vancouver, CA
Carol
Indian Rocks Beach, US
Corinne
Tucson, US
Corey
Cambridge, US
Dang
Framingham, US
Rachel
Framingham, US
Loren
Keller, US
Stefan
Bridgewater, US
Nina
Bridgewater, US
Javier
San José, Costa Rica
Rainiero
Panama
Andres
Quito, Ecuador
Rossana
Guatemala City, Guatemala
Jonathan
Panama
Roberto
Guatemala
Byron
Quito, Ecuador
Alanna
Boston, US
Diego
Cambridge, US
Jeremy
Rio Rancho, US
Tatiana
San José, Costa Rica
Kristen
Somerset, US
Abbie
Winchester, US
Renee
Perth, Australia
Jerry
Singapore
Lee
Seremban, Malaysia
Jordana
Panama City, Panama
Giovanina
Quito, Ecuador
Neslihan
Istanbul, Turkey
Beth
Walthan, US
Lea
Manila, Philippines
Teresa
Manila, Philippines
Racquel
Caloocan, Philippines
Weeling
Singapore
Peter
Davao, Philippines
Rey
Cebu, Philippines
Andreas
Amsterdam, Netherlands
Robert
Antwerp, Belgium
Lurline
Las Piñas, Philippines
Samir
Manila, Philippines
Kelly
Overland Park, US
Jill
Medway, US
Loree
Eden Prairie, US
Sue
Scottsdale, US
Jena
Quezon City, Philippines
Maricel
Taguig, Phillippines
Egon
Amsterdam, Netherlands
Grace
Mandaluyong, Philippines
Jill
Worcester, US
Marian
Cambridge, US
Judith
Taguig, Philippines
Jazel
Manila, Philippines
Marlyn
San Jose Del Monte, Philippines
Aiza
Taguig, Philippines
Katharina
Vienna, Austria
Bettina
Vienna, Austria
Lisa
Vienna, Austria
Wolfgang
Vienna, Austria
Praveen
Waltham, US
Pam
Malvern, US
Natalia
Boston, US
Antonia
Carlsbad, US
Melissa
Fitchburg, US
Julie
North Reading, US
Vincent
Marikina, Philippines
Ravi
Westborough, US
Svitlana
Vienna, Austria
Bianca
Wiener Neustadt, Austria
Jad
Beirut, Lebanon
Julia
Vienna, Austria
Stefan
Bridgewater, US
Andrew
Somerville, US
Rana
Beirut, Lebanon
Andrea
Mccleland, US
Martha
Milford, US
Erika
Cambridge, US
Ozer
Bethlehem, US
Mohani
Bridgewater, US
Meghan
West Milford, US
Kuldeep
Upton, US
Barbara
Bridgewater, US
Praveena
Bridgewater, US
Agnes
Wien, Austria
Ted
Becker, US
Mary
Bridgewater, US
Joseph
Walpole, US
Kelvin
Westlake Village, US
Kays
Bridgewater, US
Andrea
Bridgewater, US
Jon
Stroudsburg, US
Amber
Boston, US
Mike
Natick, US
Melissa
Swiftwater, US
Lin
Bridgewater, US
Ray
Framingham, US
Richard
West Kingston, US
Dhanalakshmi
Dracut, US
Wick
Swiftwater, US
Kimi
San Francisco, US
Dru
Westoborough, US
Sarah
Columbia, US
Jyoti
Shrewsbury, US
Jon
Boston, US
Selvia
Reno, US
Deanna
Newport, US
Danielle
South Easton, US
Caleb
Kansas City, US
Talaha
Cambridge, US
Doug
Westborough, US
Christine
Rochester Hills, US
Capucine
Cambridge, US
Cassandra
Boston, US
Kathleen
Holliston, US
Michelle
Waltham, US
Corey
Bridgewater, US
Susan
Framingham, US
Gloria
Milan, US
David
Boston, US
Christine
Somerset, US
Alexandra
Boston, US
Jesse
Seattle, US
Leann
Perkasie, US
Imad
Cambridge, US
Joe
Bethlehem, US
Jason
Framingham, US
Reda
Cairo, Egypt
Ulrike
Frankfurt, Germany
Rainer
Frankfurt, Germany
Jennifer
Frankfurt, Germany
Jenusha
Vienna, Austria
Martin
Frankfurt, Germany
Beate
Frankfurt, Germany
Peter
Frankfurt, Germany
Stephan
Schwetzingen, Germany
Karin
Frankfurt, Germany
Andreas
Frankfurt, Germany
Christian
Mainz, Germany
Alexandra
Frankfurt, Germany
Deborah
Swiftwater, US
Christa
Frankfurt, Germany
Susan
Swiftwater, US
Hassan
Beirut, Lebanon
Qingping
Waltham, US
Helen
Miami Shores, US
Hanane
Beirut, Lebanon
Kellie
Burleson, US
Saria
Beyrouth, Lebanon
Anthony
Phillipsburg, US
Barbie
Medway , US
Annemarie
Villach, Austria
Bryce
St. Petersburg, US
Rima
Beirut, Lebanon
Stacey
Alta Loma, US
Jamal
Beirut, Lebanon
Marie-Joe
Beirut, Lebanon
Annemarie
Villach, Austria
Arabieh
Amman, Jordan
Jeremy
Beirut, Lebanon
Irene
Singapore
Anja
Frankfurt, Germany
Rana
Beirut, Lebanon
Karine
Beirut, Lebanon
Elie
Beirut, Lebanon
Koussa
Beirut, Lebanon
Mohammad
Beirut, Lebanon
Jamal
Amman, Jordan
Hazem
Amman, Jordan
Karam
Beirut, Lebanon
Elke
Gelnhausen, Germany
Omar
Beirut, Lebanon
Ibrahim
Amman, Jordan
Jana
Neu-Isenburg, Germany
Salma
Amman, Jordan
Petra
Neu-Isenburg, Germany
Firas
Mazraat El Toffah, Lebanon
Marcel
Aschaffenburg, Germany
Cynthia
Geel, Belgium
Alexander
Frankfurt, Germany
Geoffrey
Westborough, US
Gaylene
Emerald Park, Canada
Juan
Lyon, France
Jennifer
Cambridge, US
Ahmad
Beirut, Lebanon
Annemarie
Villach, Austria
Stephanie
Bridgewater, US
Cedric
Paris, France
Kathy
Holliston, US
Nathalie
Egly, France
Marian
St Julien La Geneste, France
John
Beirut, Lebanon
Lara
Beirut, Lebanon
Anas
Amman, Jordan
Stephane
Montpellier, France
Sven
Hochheim, Germany
David
Cambridge, US
Bart
Cambridge, US
Joanne
Boston, US
Cordula
Frankfurt, Germany
Zuzana
Cambridge, US
Filiz
Istanbul, Turkey
Suzanne
Concord, US
Canneva
Boston , US
Pauline
Beirut, Lebanon
Ana
Schwalbach Am Taunus, Germany
Thorsten
Oberursel, Germany
Anneke
Delmenhorst, Germany
Shelagh
Johannesburg, South Africa
Gaudefroy
Longjumeau, France
Laith
Amman, Jordan
Dominique
Paris, France
Sahira
Zahle, Lebanon
Haddad
Vitry, France
Eva
Paris, France
Niveen
Amman, Jordan
Maton
Paris, France
Kevin
Mexico
Yong
Guangzhou, China
Ludovic
Paris, France
Marissa
Paris, France
Kitty
Boston, US
Nina
Bridgewater, US
Stefan
Bridgewater, US
Brendan
Boston, US
Adama
Boston, US
Sanjay
Toronto, Canada
Caroline
Pointe-Claire, Canada
Bo
Cambridge, US
M P
Mumbai, India
Vimal
Delhi, India
Anika
Frankfurt, Germany
Katja
Bremen, Germany
Max
Berlin, Germany
Niveen
Amman, Jordan
GM
Croissy, France
Mairea
Barcelona, Spain
Masse
Paris, France
Gregory
Montpellier, France
Peter
Kriftel, Germany
Fabrice
Paris, France
Aliya
Almaty, Kazakhstan
Sallyanne
Bury St Edmunds, United Kingdom
Fabien
Paris, France
Daniela
Vienna, Austria
Carla
Toronto, Canada
Edie
Westboro, US
Stacy
Paris, France
Rob
Shrewsbury, US
Karsten
Frankfurt, Germany
Russ
Boston, US
Rena
Framingham, US
Amy
Boston, US
Anastasia
Thessaloniki, Greece
Yong Li
Guangzhou, China
Shannon
Cambridge, US
Marko
Zagreb, Croatia
Agnãs
Choisy Le Roi, France
Phil
Boston, US
Megie
Guangzhou, China
Raquel
Vienna, Austria
Antonis
Athens, Greece
Manjiri
Bridgewater, US
Gianluca
Boston, US
Monin
Paris, France

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About Rare Diseases

There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their rarity, these conditions are often difficult to diagnose and treat. Patients can endure a long odyssey involving specialty doctors, tests, and misdiagnoses. They can go years or even decades without a correct diagnosis, all while suffering physically from complications of their disease and psychologically from not knowing what their condition is.

About NORD

National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. This year Sanofi Genzyme will make a donation to NORD in recognition of reaching our 7,000 mile goal.

About Sanofi Genzyme

Sanofi Genzyme, the specialty care global business unit of Sanofi, focuses on developing specialty treatments for debilitating diseases that are often difficult to diagnose and treat, providing hope to patients and their families. Sanofi Genzyme is dedicated to improving rare disease patients’ access to early diagnosis and appropriate treatment.

We are committed to empowering the lives of patients with rare diseases by offering sustainable, transformative healthcare options.